If you have the insurance, definitely go see an Ear Nose Throat (ENT) doctor. They can run some tests and see if you have any hearing loss, etc. They may be able to prescribe something for you as well, and find out what's really going on.
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There must be something about July/August, as I am feeling many of the pre-attack symptoms for the past few days. Last night I woke up at 3:00 AM and was pretty dizzy. I was having trouble standing and my eyes could not focus on an object without it moving.
I have had a summer cold for a week or so and that was making my ear feel congested, but I think it is all related somehow. Back to the ear doctor for me, the soonest they could see me is in 2 weeks.
yep Bob.Sure do. I was doing a search for a support forum and saw your message.
It helps if someone gets what you're saying;most people i meet have no clue what i'm talking about.
I work around i but .spend most of the time at home.
How are you dealing? How is your family copiing? How are YOU coping?
When were you diagnosed.Best advice.take it easy on the bad hair days.
I got a bar for the shower and eventually a seat..also a sprayer shower head. This helps.
The thing is,be safe.A fall could be worse than the disorder itself.
I know it can be scary but you're not alone.My husband is pretty good about it.I'm not sure he understands either but at least he doesn't look at me like i'm crazy.Supportive as possible.
Consider me a friend. I know exactly what you're going through.Over time you will begin to accept;just be cautious about falls.I also put a small night light.Getting up in a dark room is a problem.Also a lot of input can throw you.Lights and sounds for instance. Find something you CAN focus on.For me it's computer unless it gets really bad.
DO what you can on the good days.Take it easy on the bad ones.
Hello
My Husband was just found out this is what he has. I was wondering how long your longest attack was? My husband is on day 5 of six weeks. He has to use a walker to get around, we have a wheelchair close by just in case if it starts to go south. He has lost about 15 lbs, cuz he doesn't want to eat. If you have any tips to help us out that would be great. Thank you soo much
Hi everybody. First of all, I'm sorry for the mistakes. I'm from Greece and I'm not so good in English.
Bob, I have the same problem with you but unfortunately I don't have good things to say for my case. I have the Meniere's disease for 12 years. Buzzing was the first symptom but it was not so annoying. Some months later I had vertigo, about 2 times a month, for 3-5 hours a day. It was from the worst period of my life. I really had big problem, I went to so many doctors, but they told me I should get used to it!! I finally went to a doctor who gave me a diuretic medicine that helped. I was taking it untill now, I actually stopped it about 4 months ago and I don't have problems with vertigo anymore. But the buzzing and mainly the hearing loss are the big problems for me now. I first lost my hearing from the left ear and now I'm losing it from the right one. I'm going to do a surgery and put a cochlear implant, if you have heard of it. My case isn't the best one. Sometimes it doesn't end like this. I hope you're doing well.
I also have manieres and the doctors should have given u some water pills .... don't know it might help u
I just had my worst "episode" a few weeks ago. Lasted 4 days. Was pretty horrible and certainly people that have never had it don;t really understand it. It is debilitating when it is in full swing. So I went to the ENT and confirmed the hearing loss in my left ear. He has put me on a diuretic and told me to lose the salt. Of course I knew this already. He wants me to go to a specialized clinic at Vanderbilt for testing. However, I just do not see the point. It is around $2000, and as most people here have said, their is no real treatment. Anyone have any thoughts or know what this clinic could actually do for me besides tell me I have a problem?
I have Menieres Disease. It started in February 2008 with Vertigo so bad I had to go the hospital by ambulance. I was there for 4 days and they
tested to see if it was the crystals in my ear, which it was not. They told me it was probably caused by a severe inner,inner ear infection. A side
affect,which I also now have, is sudden hearing loss in my right ear. I have a constant noise in my ear like the wind or like what you hear when
you listen to a seashell. I started going to the Paparella Ear,Head and Neck Institute here in Minneapolis. I was treated first by one doctor there
for 7 months,being given one profusion, which did not help.The dizziness would come on so suddenly (the noise in my ear would stop)and sometimes lasted for a couple of hours where I would have to keep my head down until it passed. It got so I was afraid to leave the house by myself. I finally started seeing this other doctor at the Institurewho did another profusion, then steroids and finally a profusion where he actually punctured my eardrum(which did not hurt) which lasted once a week for a couple of weeks. He told me it would take a while for it to work, but it finally started to work in April of 2009. The dizziness stopped all together, but I still have the noise in my ear and my hearing has not really come back very much in that ear. I still never forget
that it could come back at any time, so I am very careful about moving my head too fast, getting up or down too fast,etc. But I can live with the noise
in my ear. I am now working again and live my life normally.
You should suggest the steroids and the profusions directly into the eardrum to your doctor.
Good luck to you.
Hi -I just replied a little bit ago abount my Meniere's Disease. Something I forgot to mention that my doctor also told me was to stay away from
all caffiene,which also means no chocolate. (Folger's coffee is 99/4% caffiene free, I drink African Red Tea which is naturally caffiene free),alcohol, very low sodium and MSG.
I never cheat on any of these things.
Thanks for all the responses since I last checked in. I had been doing pretty well for the past 2 years but started getting the fullness in my ear shortly after Easter. I assumed it was because I had eaten some high-sodium ham and other foods at my sister-in-law's Easter dinner, along with a lot of candy. But it still lingered on a week after Easter and I couldn't figure out why. The humidity levels had increased in Spring so I thought it could be that--it throws off your body's water levels to be inhaling humid air rather than dry air (I never have had an attack in the dry winter months). Last Thursday I had to leave work because I really felt on the verge of a full-blown attack, and I didn't want to take my valium and antivert pills at work because they make me really tired. Went home, slept 6 hours, woke up feeling a bit better.
Anyway, I did some serious detective work about my diet to see what changed and traced it back to the day I went grocery shopping (usually my wife does all the grocery shopping and she knows what foods to avoid buying). It turns out for the past 2 weeks I had been eating oatmeal cookies that contained TBHQ! This makes sense because that is around the same time I started feeling dizzy again. So hopefully that was it, maybe I can go another 2 years before an attack.
Turns out one of the starring actresses in the new ABC Family TV show "Switched At Birth", Katie Leclerc, has Meniere's disease too. She portrays a deaf character and in real life she has suffered some hearing loss. Hopefully this will call some attention to the disease as it is often undiagnosed in many people.
- Adam Lenhardt
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